Connection to Support Services

For patients who are not eligible for assistance through IncyteCARES or who need additional support beyond what the program can provide, IncyteCARES oncology certified nurses can identify and refer you to other resources, such as independent nonprofit organizations (INOs) and foundations.*

Foundations may be able to help with:

  • Arranging transportation to and from medical appointments
  • Travel cost assistance for gas, tolls and tax, parking, and bus or train fare if needed
  • Copay/coinsurance assistance for government-insured patients

IncyteCARES may also refer eligible patients to INOs for emotional and educational support. These organizations include Cancer Support Community, advocacy organizations such as the MPN Research Foundation, and nonprofit organizations such as the Leukemia & Lymphoma Society and CancerCare®. INOs may provide the following services to patients and caregivers:

  • Supportive counseling for emotional, social, and practical concerns
  • Information about support groups and referrals to local services at no cost

Each organization is completely independent of influence or control by Incyte. Each has its own application process and procedures. Scroll down or click here to learn more about applying to INOs and foundations.

*Some foundations or organizations may receive or have received donations from Incyte Corporation.

CancerCare® Co-Payment Assistance Foundation

Website: www.cancercarecopay.org
Email: information@cancercarecopay.org
Phone: 1-866-552-6729 (1-866-55COPAY)

Good Days®

Good Days from Chronic Disease Fund

Website: www.mygooddays.org
Email: info@mygooddays.org
Toll-Free Patient Information: 1-877-968-7233

Patient Access Network (PAN) Foundation

Patient Access Network (PAN)

Website: www.panfoundation.org
Email: contact@panfoundation.org
Phone: 1-866-316-PANF (7263)

Information to help you apply to independent nonprofit organizations or foundations

To apply to a foundation, you’ll want to gather some information, including:

  • All of your medical conditions and treatments
  • Your healthcare professional’s name, address, telephone number, and fax number
  • Your healthcare plan information. Have your insurance card ready when you contact us. If you have more than one healthcare plan, have all the information ready
  • The amount of your copay/coinsurance, if you know this
  • Your household income. If you have a pay stub, tax return, or disability form, have it on hand

If IncyteCARES refers you to a foundation and you want to request support, you’ll need to fill out an application. Here are some questions you might want to ask the foundation:

  • How long does the approval process take after I apply for help?
  • How will I be told if I am approved for or denied help from you?
  • Will my healthcare professional also be told what you decide?
  • If I am approved, where are the payments sent?
  • For how many months can I expect to receive this help?

Each application requires you to verify your financial need. Eligibility for foundation services is determined by individual organizations independent of influence or consideration by Incyte. It can take from 2 weeks to 30 days for a foundation to review your application. If you are turned down by one foundation, IncyteCARES may be able to refer you to another organization.

Have a comment or question about IncyteCARES?

We welcome your feedback.

 An IncyteCARES oncology certified nurse may contact me regarding my question or comment.

Connection to support services FAQs

Who can I contact about getting a referral for assistance from independent nonprofit organizations or foundations?

An IncyteCARES registered nurse can refer you to independent nonprofit organizations and foundations. You can call IncyteCARES nurses toll-free at 1-855-4-Jakafi (1-855-452-5234) Monday through Friday, 8 am to 8 pm, ET. You can also contact an IncyteCARES nurse through email.

What support services may a foundation or nonprofit organization provide?

Foundations may be able to help with:
  • Arranging transportation to and from medical appointments
  • Travel cost assistance for gas, tolls and tax, parking, and bus or train fare if needed
  • Copay/coinsurance assistance for federally insured patients
Independent nonprofit organizations (INOs) may provide patients and caregivers with these services:
  • Supportive counseling for emotional, social, and practical concerns
  • Information about support groups and referrals to local services at no cost

What are the eligibility requirements for referrals to support services?

Eligibility for foundation services is determined by individual organizations independent of influence or consideration by Incyte.

What transportation support is available through IncyteCARES?

No transportation support is offered through IncyteCARES; however, IncyteCARES can refer patients in need to a nonprofit foundation that provides assistance with transportation expenses. Patient eligibility is determined solely by the foundation.

To whom do you refer patients for social and emotional support?

IncyteCARES refers patients to an independent nonprofit organization (INO) that provides social and emotional support. This INO provides an evidence-based professional program in person, online, and by telephone that includes group and individual counseling by licensed counselors, education, healthy lifestyle classes, social activities, and information on referrals. Incyte and other third parties provide grants and funding to INOs; therefore, all programs of INOs are provided free of charge.

Indications and Usage

Jakafi is a prescription medicine used to treat people with polycythemia vera who have already taken a medicine called hydroxyurea and it did not work well enough or they could not tolerate it.

Jakafi is also used to treat certain types of myelofibrosis.

Important Safety Information

Jakafi can cause serious side effects, including:

Low blood counts: Jakafi® (ruxolitinib) may cause your platelet, red blood cell, or white blood cell counts to be lowered. If you develop bleeding, stop taking Jakafi and call your healthcare provider. Your healthcare provider will perform blood tests to check your blood counts before you start Jakafi and regularly during your treatment. Your healthcare provider may change your dose of Jakafi or stop your treatment based on the results of your blood tests. Tell your healthcare provider right away if you develop or have worsening symptoms such as unusual bleeding, bruising, tiredness, shortness of breath, or a fever.

Infection: You may be at risk for developing a serious infection during treatment with Jakafi. Tell your healthcare provider if you develop any of the following symptoms of infection: chills, nausea, vomiting, aches, weakness, fever, painful skin rash or blisters.

Skin cancers: Some people who take Jakafi have developed certain types of non-melanoma skin cancers. Tell your healthcare provider if you develop any new or changing skin lesions.

Increases in cholesterol: You may have changes in your blood cholesterol levels. Your healthcare provider will do blood tests to check your cholesterol levels during your treatment with Jakafi.

The most common side effects of Jakafi include: low platelet count, low red blood cell counts, bruising, dizziness, headache.

These are not all the possible side effects of Jakafi. Ask your pharmacist or healthcare provider for more information. Tell your healthcare provider about any side effect that bothers you or that does not go away.

Before taking Jakafi, tell your healthcare provider about: all the medications, vitamins, and herbal supplements you are taking and all your medical conditions, including if you have an infection, have or had tuberculosis (TB) or have been in close contact with someone who has TB, have or had hepatitis B, have or had liver or kidney problems, are on dialysis, had skin cancer, or have any other medical condition. Take Jakafi exactly as your healthcare provider tells you. Do not change your dose or stop taking Jakafi without first talking to your healthcare provider. Do not drink grapefruit juice while on Jakafi.

Women should not take Jakafi while pregnant or planning to become pregnant, or if breast-feeding.

Please see Full Prescribing Information, which includes a more complete discussion of the risks associated with Jakafi.

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.

You may also report side effects to Incyte Medical Information at 1-855-463-3463.